Advocating for Joey . . .

10 Sep

There is something wonderful about finding a community for your disabled child. We have rejoiced as we have seen our son blossom at his three year college/horticulture program in Wisconsin. This is his second year.

Something really neat that happens is you start to realize how everyone in such a community plays a role in advocacy for the disabled. The disabled even learn to self-advocate.

In our advocacy, we are not all the same. I am Joey’s mom. That means that my natural bent is to advocate for Joey. It doesn’t mean I *can’t advocate for others, but just that my most natural stance is as Joey’s advocate. The more successful I am at helping him, the more I can generalize my skills to helping others.

Meanwhile, the staff are the ones who have to advocate for everyone, to keep things in balance, and to make sure that no one gets left behind, even if their parents are *not strong advocates for them.

That advocacy is to be expected and honored. It is a totally healthy part of Joey’s community.

So it is that our latest challenge is how to find time for Joey, who was left in the dorms with one other second year student, to be part of his second year class, which is living, mostly, in a group home situation on campus.

One of their classmates is actually in the third year apartments and that person turns out to be Joey’s best friend.

So you have best friends who are of vastly different abilities. Happens all the time in the real world.

And you have college, where best friends expect to eat together and spend time chatting every day of the schoolyear. That is how all of us have experienced college. That is how people with disabilities like to experience it, too.

The school is growing and that is a good thing. Having too many people in a class to fit them all in the group home is a good thing, too, showing that we need to be serious about fundraising and getting at least one more group home built on campus.

But we have our individual children with disabilities living in this situation. We need to have the wisdom of Solomon so their college experiences will be as normative as possible.

I am glad I am working with a valiant group of advocates for the disabled. This wonderful group of staff finds solutions to help our wonderful group of students. Every time.

With God’s help we do this . . .

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